Dr. Robert Friedlander discusses the diagnosis and treatment of Chiari Malformation.
34 Comments
And yet I've heard this surgery is rarely successful 😟 My friend has been shown on her mri that she has Chiari. She is deteriorating so rapidly I'm scared for her life, yet they're saying her symptoms have nothing to do with Chiari and won't help her. It's disgusting how she's been treated!
I've got a 2cm chiari malformation the doctors have said not to operate as I show no symptoms at all. It's a weird situation since it's relatively large
My aunt passed away from Arnold chari in 2014 ……worst day of my life when I found out she passed she was my insperation she used to paint with her mouth
fuccck! I have this. ohhh men I'm feeling low now.. anything related to head is very serious..I'll blame it on coughing.. I have allergy on coughing for about a month now..
My uncle had this. Had the surgery and then stroked out (he was over 300 lbs) so don't get freaked out- sadly we lost him. He was a vegetable but I could feel like he knew what was going on he just did not or could not communicate.
I have cerebellar ectopia from C1-C2 injury to transverse and alar ligaments with the same symptoms of chiari malformation. I'm currently looking for a surgeon who can fix both issues of instability and brainstem pressure. I have a 10mm synovial mass causing ventral cerebellar junction compression and foramen magnum stenosis. Please help! I've been injured for 7 years and recently saw Dr. FRANCK for diagnosis but cannot afford treatment.
I operate this disease 2 times with the difference of 5 years second time it's better Now i want to survive with exercise and walk which exercise is better for me??
I have chiari malformation 1. This shit painful and agg . i want my normal life back . I cry a lot I'm fucking depressed I have swallowing problems. I trip over stuff that ain't there 😂 (balance)
I'm thinking about having the surgery. But no1 have spots available. So I may have to travel😓
Just had the surgery a year ago at 26! The headaches are gone but I still have issues with my balance . Docs says it will go away with time. I love hiking high up in the mountains but I just can’t. I fall down so easily .
Mim ajuda tenho chiario tipo1 má formação no cérebro mim ajudar sou mãe solteira e não tenho condições pra fazer uma cirurgia sou do Brasil 085 986046532
Do these things always display symptoms and/or require treatment? I have a Chiari Malformation (found accidentally during an MRI after an epileptic seizure) and I haven't really noticed anything like this video describes, at least not to an abnormal degree. The doctors haven't made a big fuss about it either and seem more concerned with my albeit mild epilepsy than anything.
I have this with EDS and aneurism. I cannot have this surgery unless severe emergency due to 5 cervical fusions. I was told if they did this o would never be able to hold my neck up again
i HAD THIS AND OTHER PROBLEMS WITH A BONE GROWING INTO MY BRAIN, AFTER SURGERY WAS FINE THEN TWO YEARS LATER STARTED WITH hydrocephalus AND HAD A SHUNT PUT IN MY BRAIN AND AM ALWAYS GETTING NECK AND HEADACHES?
I had my chiari decompression surgery about a year ago. The coughing and sneezing headaches have been cured however my hands are still numb and my syrinx is still quite large almost the same as presurgery. What other options are available? Is there a way to suck out the brain fluid in the syrinx?
And yet I've heard this surgery is rarely successful 😟 My friend has been shown on her mri that she has Chiari. She is deteriorating so rapidly I'm scared for her life, yet they're saying her symptoms have nothing to do with Chiari and won't help her. It's disgusting how she's been treated!
Please Google Mancub and Fern.
Yo has anyone got surgery from it ?
Can you help me
I've got a 2cm chiari malformation the doctors have said not to operate as I show no symptoms at all. It's a weird situation since it's relatively large
My aunt passed away from Arnold chari in 2014 ……worst day of my life when I found out she passed she was my insperation she used to paint with her mouth
Sabre has this condition
how to cure weakness after surgery of arnol chiari malformation
fuccck! I have this. ohhh men I'm feeling low now.. anything related to head is very serious..I'll blame it on coughing.. I have allergy on coughing for about a month now..
How do i get strong? Chiari has made me so physically weak!!
Im 13 and im getting this surgery soon they have been holding off the surgery for years but i need it now if we waited longer i could stop breathing
I just found out I have this but don’t want to have the surgery.. like can I just take medication instead for all of my symptoms 😩
My uncle had this. Had the surgery and then stroked out (he was over 300 lbs) so don't get freaked out- sadly we lost him. He was a vegetable but I could feel like he knew what was going on he just did not or could not communicate.
I have cerebellar ectopia from C1-C2 injury to transverse and alar ligaments with the same symptoms of chiari malformation. I'm currently looking for a surgeon who can fix both issues of instability and brainstem pressure. I have a 10mm synovial mass causing ventral cerebellar junction compression and foramen magnum stenosis. Please help! I've been injured for 7 years and recently saw Dr. FRANCK for diagnosis but cannot afford treatment.
I operate this disease 2 times with the difference of 5 years second time it's better Now i want to survive with exercise and walk which exercise is better for me??
My son is 7, and was diagnosed when he was 8 months.
I have chiari malformation 1. This shit painful and agg . i want my normal life back . I cry a lot I'm fucking depressed I have swallowing problems. I trip over stuff that ain't there 😂 (balance)
I'm thinking about having the surgery. But no1 have spots available. So I may have to travel😓
Just had the surgery a year ago at 26! The headaches are gone but I still have issues with my balance . Docs says it will go away with time. I love hiking high up in the mountains but I just can’t. I fall down so easily .
Vertigo. Why do they never say vertigo.
i have Chiari but its not bad i just have an MRI every 18 months and take headache meds
My came back after fifteen years. Waiting to see a surgeon.
Comprehensive video…
1 week and 4 days after surgery and still fucking miserable. Chiari is such a fuck up man. All my future plans in life…. GONE
Mim ajuda tenho chiario tipo1 má formação no cérebro mim ajudar sou mãe solteira e não tenho condições pra fazer uma cirurgia sou do Brasil 085 986046532
Do these things always display symptoms and/or require treatment? I have a Chiari Malformation (found accidentally during an MRI after an epileptic seizure) and I haven't really noticed anything like this video describes, at least not to an abnormal degree. The doctors haven't made a big fuss about it either and seem more concerned with my albeit mild epilepsy than anything.
I have this with EDS and aneurism. I cannot have this surgery unless severe emergency due to 5 cervical fusions. I was told if they did this o would never be able to hold my neck up again
i HAD THIS AND OTHER PROBLEMS WITH A BONE GROWING INTO MY BRAIN, AFTER SURGERY WAS FINE THEN TWO YEARS LATER STARTED WITH hydrocephalus AND HAD A SHUNT PUT IN MY BRAIN AND AM ALWAYS GETTING NECK AND HEADACHES?
My moms getting this surgery…. Im so scared for her
Sabre Norris has this and i think i might bit prob not
I have that :/
Does anyone else get FULL body numbness?
One of the BIGGEST problems with all of this- is many of us don't have chiari specialists.
I had my chiari decompression surgery about a year ago. The coughing and sneezing headaches have been cured however my hands are still numb and my syrinx is still quite large almost the same as presurgery. What other options are available? Is there a way to suck out the brain fluid in the syrinx?
I was given a medical marijuana card to help and the products HELP, I recommend it to everyone’ #florida #legalizeit #chiarimalformation