Autism, Cerebral Palsy, AFOS, service dogs, seizures, feeding tube set ups, TALKING ABOUT IT ALL!



The feeding tube bag tutorial – Pins for Stims- For anyone new to the channel, Dusty-Mae has …

16 Comments

  1. The medicine dusty was on was a steroid which causes osteoporosis. I was on a steroid several years ago because of a tumor I had behind my eye. And caused me to have osteoporosis and I had fractures in my femur and sacrum and now I cannot walk.

  2. Poor thing I have CP to but I have the other type and I going to say something to you when I was younger I don’t have any equipment but as I get older I get more suff

  3. I think about your family every day!
    I enjoy your videos and get to know whats going on and learn so i am imformed if i ever have a child with dustys conditions! Lots of support from United States!

  4. Thank you for the video. You're clearly dealing with a lot right now. So much news to digest. Just take it one day or even hour at a time if you need to. You're doing an awesome job! Poor Dusty, though. She must have been totally wiped out after that horrible seizure. I hope she's feeling better now.

  5. That is interesting about genetic Cerebral Palsy. We were told there is no way CP progresses so that is why they then started doing genetic testing. Her original diagnosis was CP but then we went to 15q Burnside Butler etc.

  6. Love 💖 you guys so much your such a beautiful family 💕💕❤️❤️❤️❤️❤️❤️💖💖💖💖 I’m from the uk 🇬🇧 sending lots of love 💕 hugs 🤗

  7. Thank for all the info. We are watching out for this with our nephew and just recently found sister is pregnant with baby girl so just good to be have knowledge on stuff. Sorry to hear that you had to use rescue medicine for this seizure that she had. I pray more and more news comes with every appointment. But I must you have a beautiful family, and Dusty I'm still loving that hair cut beautiful girl.

  8. Idk if you have said it before but I've wondered what kind if feeding tube does Dusty have. When my little brother Noah had one when he was younger he had a mic key button. I remembered I had learned how to not only feed him through it but to change his button.

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